11 September 2014

Just over 3 weeks ago I moved my wife from the aged care facility she has been residing for the last year. I was offered a room in the dementia wing of the aged care facility in the retirement village where I live. When my wife was assessed as needing residential aged care in October 2012 I asked that her name to added to the waiting list for a room in the facility. I had contemplated what I would do if and when an offer was made to us. She seemed very settled where she was and the nursing care was excellent. Sometimes the PCA care fell short of ideal, mainly due to the amount of work required of the two PCA’s caring for 20 residents , all of who had some measure of dementia. A tour of the new aged care facility quickly helped me to make up my mind to move her. The new home is called The Manor and consists of 4 houses, each with 15 suites. There are still two PCA’s to each house, and therefore they have more time with each resident in their care. The Manor also has a more homely atmosphere with 4 small lounges in addition to the large open plan lounge and dining area in the centre of the building.

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The retirement village is owned and operated by a not for profit company and more information can be found by following this link: http://www.villagebaxter.com.au

Following on from reading ‘Loving someone Who has Dementia’ by Pauline Ross I have also read ‘Love in the Land of Dementia’ by Deborah Shouse.  This is also subtitled ‘Finding Hope in the Caregivers Journey’. This a record of a daughter’s journey caring for her mother, and experiencing the truth and depth of her father’s love for her mother. I read the e-book version available from Amazon Books.

Currently I am reading ‘While I Still Can’ by Rick Phelps and Joseph Leblanc, again available as an e-book from Amazon. This is the story of Rick Phelps who was diagnosed with younger onset dementia at the age of 57. Rick has also created a Facebook group called ‘Memory People’. This is a support and awareness group for people living with dementia, caregivers, advocates, family members and professionals seeking comfort, understanding, and receiving support and helpful information. To quote from the groups own description on Facebook, ‘We don’t talk about miracle cures or false hopes here. We share about the reality of dementia and memory impairment, and through support and education we find the ability to take another step each day in this journey’.

I hope that some of my readers here might something that helps in their caring/caregiver roles in these books.




About labtad

Born in Halifax, West Yorkshire, England. Migrated to Australia in 1968 and now live in an outer South eastern suburb of Melbourne. Married since 1966 to my wife who was diagnosed with dementia in 2011. I am an imperfect follower of the Christian faith who believes that most things in life happen for a reason or purpose. The last 12 years, since my wife showed the first signs of having memory problems, have gradually taught me patience, compassion and some understanding of the situations that arise when a person Is living with dementia.
This entry was posted in Caring, Dementia, residential aged care. Bookmark the permalink.

1 Response to 11 September 2014

  1. Welcome to the FTD Information and Support facebook page, Peter. Everyone in the group is caring for, or has cared for someone with FTD. Some are at the end of their journey, some just beginning. I hope you will find support and community with us. I have written extensively about my own experiences at http://deborahthelwell.wordpress.com. My book “The Dance” will be published shortly. But my main focus is on bringing awareness to this horrendous condition that destroys so many lives.
    I wish you well on the rest of your journey


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