May 22 2013

Since I have no knowledge of who is reading this blog, (apart from some family members and some close friends) I think it is appropriate that I restate the objectives of having this diary. If someone finds this blog via a web search engine and wonder the reason why it exists here it is copied from the very first post I made  in June 2012:

This blog has two purposes. The first is that is intended to be an occasional record of the day to day caring for my wife who was assessed as having Primary Progressive Aphasia, a type of dementia, in September 2011. The second reason is that in some small way it may help other people who find themselves in a similar situation. When my wife’s dementia started I had no idea of where or how it would lead us and the changes it would make to our way of life.

I might also add that it helps me to ‘unload’ some of the emotion and frustration I experience in this caring role. As someone said the other day at the Creative Ways to Care course I have been attending – I have been handed a long term contract, which I did not apply for and I am not qualified to do (and the pay is lousy too).

I ask if any readers have any comments on the contents of these pages that you don’t be shy and feel free to to make statements of advice, disagreement or whatever you feel like adding. Just be aware that any spam is filtered out and will not make it to any published posts.

The Creative Ways to Care Course finished this week. Therefore the lovely carer Georgina will no longer be coming to look after my wife each week. I am pretty sure that my wife will miss those visits and I wish there was a way in which the contact could be maintained. The going charge rate for this type of service is $44 per hour. So for the last 7 weeks Carer Support have been footing the bill for 5 hours each week = $220 x 7 = $1540. On top of that morning tea and lunch have been provided during the course at a cost of $15 per head x 10 attendees x 7 weeks = $1050. Most of the course participants had carers provided for the days they attended. Lets say 8 out of 10 had carers. 8 x 1540 = $12320. Add to that hire charge of the room in which the course was held and food etc, there isn’t much change out of $14000. And I mustn’t forget the course leaders, two dedicated people whose experience and knowledge in this field is very extensive and freely shared when anyone of us sidetracked the discussion to describe the latest challenging behaviour we as carers had witnessed.

Just in case anyone out there has not discovered this course and would like to know more get in touch with Commonwealth Respite and Carelinks Centre in your area. This is the link for people in the southern suburbs of Melbourne



About labtad

Born in Halifax, West Yorkshire, England. Migrated to Australia in 1968 and now live in an outer South eastern suburb of Melbourne. Married since 1966 to my wife who was diagnosed with dementia in 2011. I am an imperfect follower of the Christian faith who believes that most things in life happen for a reason or purpose. The last 12 years, since my wife showed the first signs of having memory problems, have gradually taught me patience, compassion and some understanding of the situations that arise when a person Is living with dementia.
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